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How we can help

We'll help you understand, and take control so that you can secure the best possible outcome following your brain tumour diagnosis.

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Your support means we can help thousands of brain tumour patients across the UK.
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How you can help

Our aim is to help everyone diagnosed with a brain tumour access the help they need to get back on top of things. Get to know us, and find out about our unique brain tumour support.

About brainstrust

An easy to use database of brain tumour support services, and brain tumour clinical trials. Find out what is available to you, on your doorstep and beyond.
Click here to visit the brain tumour hub

the brain tumour hub

Help us build a brain tumour support service to help 60,000 people.

Today, brainstrust and the National Cancer Registration Service of Public Health England are able to share for the first time up-to-date information on the number of people in England and Wales living with a brain tumour.

download the brain tumour infographic
DOWNLOAD THE INFOGRAPHIC HERE (JPG, 1.6mb)

We now know categorically that there are over 55,498 people living in England and Wales with a brain tumour.
And there is potential for there to be a further 20% increase in this number when we have accurate data for London and the South East, and a further jump once we have data for Scotland, where we are also helping hundreds of people with a brain tumour and their carers.

Before today, we knew that around 8,600 people a year were diagnosed with a primary brain tumour, but knew that this figure did not reflect the real scale of the challenge...


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Wear Grey for a Day 2014 – 1st October 2014

Wear Grey for brain tumours and brain tumour support 2014Don’t be benign about brain tumours.
Brain tumours come in all sorts of grades, shapes and sizes, and the impact is rarely benign.

 

People with any sort of brain tumour can experience awful symptoms, many of which you can’t see. Memory loss, exhaustion and changes in personality are just three of the serious symptoms that a brain tumour patient may have to live with.

 

This year we're wearing grey on October the 1st to help people understand that all brain tumours can have a devastating impact.



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National Cancer Patient Experience Survey 2014 - what does this tell us about brain tumour care?

The results of the 2014 National Cancer Patient Experience Survey have just been published. The good news? Overall, cancer patients have a good patient experience. This is largely down to having a designated clinical nurse specialist (CNS) in charge of their care.

Brain tumour patients are the most engaged with research

 

We’re also thrilled that brain cancer patients are coming out tops for being involved in discussions about research (the scores ranged from 37% (brain/CNS and haematological cancers) to 14% (urological cancer)); and actually taking part in research (the scores ranged from 75% (brain/CNS) to 58% (lung, prostate and urological cancers)). Hurray, you guys, for leading the way!

 

Poor experience of brain tumour care


Brain tumour patients gave lower scores than any other cancer patients in a few areas, including: receiving understandable results; having things explained to family...


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