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Brain tumour help

We'll help you understand, and take control so that you can secure the best possible outcome following your brain tumour diagnosis.

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Your support means we can help thousands of brain tumour patients across the UK.
We would love to have you on board. Click here and find out how you can help

How you can help

Our aim is to help everyone diagnosed with a brain tumour access the help they need to get back on top of things. Get to know us, and find out about our unique brain tumour support.

About brainstrust

An easy to use database of brain tumour support services, and brain tumour clinical trials. Find out what is available to you, on your doorstep and beyond.
Click here to visit the brain tumour hub

the brain tumour hub

National Cancer Patient Experience Survey 2015: our response

Results from the National Cancer Patient Experience Survey have today been published. This survey, published annually, is designed to:

  • Monitor national progress on cancer care
  • Provide information that could be used to drive local quality improvement
  • Assist multi-disciplinary teams (MDTs), commissioners, NHS Trusts in improving patient services
  • Inform the work of charities supporting cancer patients.

Every year we wait for these results to see what has changed for you - our brain tumour community. And every year we re-evaluate where brainstrust is positioned so that we can help change the agenda on your behalf. But we can’t win all the battles and this is evidenced in the 2015 results. 

What the survey shows

Frustratingly, many of the findings show a worsened...


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The NHS closes its care.data programme

It was announced yesterday that the NHS’s care.data programme has been closed as a result of Dame Fiona Caldicott's Review. Dame Fiona is our National Data Guardian and you can read more about the review by clicking here.

 

What was care.data?

The programme aimed to extract anonymised patient data from GPs to a central database held by the Health and Social Care Information Centre (HSCIC) to provide a picture of the care being delivered between different parts of the healthcare system and to identify areas where more work or investment might be needed. But the programme was controversial from the outset. 

 

Ben Goldacre summed the programme's flaws up in 2014 by...


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Great Yorkshire Run: Join our team for this scenic 10k in Harrogate – 24th July 2016

The Great Yorkshire Run has moved to one of the UK's most scenic locations to celebrate its 10th anniversary. It will now take place in Harrogate, in the heart of the spa town. This is an exclusive, intimate event, but you can be a part of it with team brainstrust.


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