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Brain tumour help

We'll help you understand, and take control so that you can secure the best possible outcome following your brain tumour diagnosis.

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Our aim is to help everyone diagnosed with a brain tumour access the help they need to get back on top of things. Get to know us, and find out about our unique brain tumour support.

About brainstrust

An easy to use database of brain tumour support services, and brain tumour clinical trials. Find out what is available to you, on your doorstep and beyond.
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the brain tumour hub

National Cancer Patient Experience Survey 2015: our response

Results from the National Cancer Patient Experience Survey have today been published. This survey, published annually, is designed to:

  • Monitor national progress on cancer care
  • Provide information that could be used to drive local quality improvement
  • Assist multi-disciplinary teams (MDTs), commissioners, NHS Trusts in improving patient services
  • Inform the work of charities supporting cancer patients.

Every year we wait for these results to see what has changed for you - our brain tumour community. And every year we re-evaluate where brainstrust is positioned so that we can help change the agenda on your behalf. But we can’t win all the battles and this is evidenced in the 2015 results. 

What the survey shows

Frustratingly, many of the findings show a worsened...


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Number of brain tumour patients benefiting from stereotactic radiosurgery and radiotherapy treatment to double

The NHS has announced the award of new contracts for stereotactic radiosurgery and radiotherapy (SRS/SRT) – specialist forms of radiotherapy that can be used to treat people living with intracranial conditions, such as benign and malignant brain tumours. This means that the number of patients receiving these types of treatment will more than double over the next three years.

 

More than 6,200 patients a year are expected to benefit from these services by 2018/9, compared to just over 2,400 in 2014/15. The new SRS/SRT services are spread across all regions of England, improving access to services and making it possible to treat more people closer to home. You can view a full list of all of the services providers here.

 

Dr Helen Bulbeck, our Director of Services and Policy at brainstrust says:

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