"When you are diagnosed with a brain tumour, it's like being stood on the edge of a precipice. There's so much to learn, but little in the way of coordinated brain tumour support and information"
brainstrust is the brain tumour charity that offers a unique support service to people who are coping with a brain tumour.
We provide pragmatic support and advice from the point of diagnosis. We can do this because of our experience battling brain cancer, our unique network of advisors, and our supporters in the medical, scientific and nursing community.
Elemental to our work is high performance coaching. This sets us apart. When we are no longer to able to change a situation we are challenged to change ourselves.
You are the person who is ultimately going to have the greatest impact on your life. Our coaching relationship with you will enable you to face these challenges, so that you learn how to develop resilience and utilise resources to their full potential in your battle against your brain tumour.
We promise that your experience with us will be:
Remember that you not alone on your brain tumour journey. brainstrust is a gateway to all kinds of experience based brain tumour support.
Real world, or virtual world, you can click on links, pick up the phone, meet, type, talk, text and share, but most of all, know that you are not alone.
We are ‘not just a phoneline’. Instead, we offer a range of personal support services that embrace the ways that brain tumour patients and carers want to communicate, and that are accessible when these people need to use them.
To this end, we provide 24/7 phone and email support, face to face ‘Meet Ups’, printed information and support tools, as well as an online community and 2 websites that each meet a very specific, predetermined set of needs: www.brainstrust.org.uk and www.braintumourhub.org.uk.
In short? Our help often translates into real, improved clinical outcomes for our patients.
We can't wait to meet you!
Meg (left) is brainstrust’s icon and is the face that launched this ship. Aged 19, when she was about to begin a new life at university, she was diagnosed with a malignant brain tumour.