There is nothing like hearing practical advice from carers who have been there, done that. This is why we want to share our super little leaflet with you. It might but small but it is a real gem and is full of things you, as a carer, can ask others to do for you to make things easier. One of the hard things about being a carer is managing the goodwill that is around - and there is loads. This resource will help you with this. You may also find our support group on Facebook really useful to. This is a closed group and is really well supported. Ask anything and someone will be there to help. If you'd like to join this group email firstname.lastname@example.org you'll be on there in a jiffy.
Here are some tips for YOU - the carer, from a carer:
- Being a carer is a job. It won't always be one which you have chosen and respite is your earned right. Take it. Often.
- Don't delay in asking for help. If you don't ask for it, you will run yourself into the ground.
- People want to know how they can help. Be specific. Suggest practical things that they can do. This helps them and then everyone is happy.
- A brain tumour diagnosis can lead to changing roles within the home. If you’re not used to house keeping (or even if you are!), relax standards, prepare simpler meals, and ask for help
- Take time to learn about the condition of the person you are caring for.
- There is a difference between caring and doing. Be open to new ideas which may help the person you are caring for have more independence.
- Trust your instincts. Most of the time they will lead you in the right direction.
- Don't feel resentful about the freedom you have lost; focus on what you are gaining.
- Talk to the patient about your feelings. Talk about other things as well. Having a brain tumour doesn’t mean they’ve lost all interest in their favourite things.
- Seek support.