Need help now?Resources
We need the right resources with us on our journey; a little bit of planning goes a long way! These are the resources that we have found useful. And if you have an idea which we have missed but which you have found invaluable then send it our way – we’ll add it to this section.
brainstrust provides its booklet “Have you lost your way?” to neuro-oncology specialists and Macmillan Centres nationwide. Many patients find that they are left to manage their care pathway for themselves. brainstrust has developed this resource with Andrew McEvoy, Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery, to help you navigate your journey.
Click here to view interactive online booklet
Click here to open and download printable pdf
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Glossary
Flair sequence? Positron? Glial Cells? Feel like you are back at school? Faced with a new, complex language really can make you feel all at sea. Use our glossary to help you navigate the doctors’ lingo.View the glossary
Bookshelf
Was it C. S. Lewis who said 'we read to know that we are not alone'? Since our voyage began I have read copious books related to neurosurgery – not all non-fiction. If reading helps you, then here a few recommendations.And if you purchase a book through our store Amazon will donate 10% of what you spend to brainstrust.
Visit the bookshelf
Websites
Navigating your way through the Internet can be daunting. Some sites are trustworthier than others. We have listed here the sites that we know people have found useful, so although you won’t be able to shop online here, you will be able to find out ‘stuff’.View our links
Contacts
We've compiled a useful list of support groups and neurocentres around the country.View helpful contacts
Money matters
As if you haven’t got enough to worry about. Having a brain tumour will, at some point, impact on you financially as well as physically and emotionally. The same guiding principle applies – look this tiger in the eye. The more prepared you are, the better you will be prepared if you need additional financial support.View money matters
