WebsitesUseful articles and web pages, to help you find out more about brain tumours:
- Cancer Research UK - Brain Tumour information
- BUPA - Brain Tumour fact sheet
- NHS Direct Online Health Encyclopaedia - Brain Tumours
- Patient UK - Brain Tumour leaflet (PDF format)
- The British Epilepsy Association - Seizure Information
- Brainlife - Brain Tumour Medical Database
- Teenage Cancer Trust
brainstrust is a member of
Brain Tumour Research
Brain Tumour Research specifically
funds brain tumour research at UK
centres to accelerate progress and
improve patient treatments and outcomes.
brainstrust is a member of the
International Brain Tumour Alliance
The Cancer Campaigning Group
The Cancer Campaigning Group (CCG) is a coalition of national cancer-related charities representing service providers, research, advocacy and campaigning groups for cancer patients and their families. It enables cancer charities to speak and campaign with a single unified voice.
The Rarer Cancers Forum offers advice and information to individuals with rare and less common cancers.
The European Cancer Patient Coalition is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups from the major to the rarer cancers
brainstrust is also a member of the All Party Parliamentary Group for brain tumours.
Something to make you feel better
Look Good . . . Feel Better (LGFB) is the Beauty Industry's charity, formed 15 years ago specifically to help women combat the visible side-effects of their cancer treatment. Free LGFB skincare and make up workshops are held in over 50 hospitals and cancer support centres across the UK. After two hours ladies leave smiling, laughing, full of renewed self esteem - and looking fantastic. Each lady is given a gift bag full of fabulous donated products which she is shown how to use on the day and which is hers to take home and enjoy.
Feelbetterduringchemo provides key products which are designed to make the side effects of chemo and RT more bearable. Their principle ingredient, Totum Lithium, is naturally present in Evaux les Bains spring water. This actively reduces the pain and suffering caused by these treatments and aids the healing process.
Life Coach Directory is a huge life coach support network, enabling you to find a life coach close to you geographically and appropriate for your needs. A cancer diagnosis is life changing; it makes you reevaluate your life and your values. This is a free, confidential service that will help you to seek a new direction in your life to find the encouragement you need.
Sometimes you need that bit extraSometimes you just need space to talk and cry and laugh away from the family. somewhere a bit more anonymous where you can say the things you want to say but can't say to your family, whether you are the carer or the patient. Here are sites to help you. And don't forget - you can always pick up the phone and chat to brainstrust.
The Cancer Couselling Trust is a specialist cancer counselling charity offering support to patients and those close to them who are facing the impact of a cancer diagnosis at any stage of the disease.
The Counselling Directory provides the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help. The website also contains a number of sections on emotional disorders (types of distress section) and provides some useful statistics. Every counsellor on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover, or is registered with a professional body online with recognised codes of ethics and practice, this way the Directory can be assured of their professionalism.
Personal WebsitesWeb pages set up to share personal stories:
- Do I know you? - Hazel Crutchley's story
- Rafe's Brain Diary
- Milly Bell - resource for children dealing with bereavement in the family