We know how lost you can feel when you or your loved one is diagnosed with a brain tumour. But we also know how many invaluable support services you can find locally to help you at every step of your brain tumour journey.
At brainstrust, we like to make access to support as easy as possible. Wouldn’t it be great if information on the best local services was available in one place? In a directory maybe?!
Well, in Sheffield we've done just that and we're excited to launch our first regional edition of the little white book, covering the city and the surrounding area.
It's an invaluable little guide that brings together information on useful local services that can help if you're affected by a brain tumour. It includes details on a range of services, including support groups, financial help, welfare advice and...
Two news items doing the rounds this week. One is the Cancer Drugs Fund (CDF); the other is the Cancer Task Force. Both are responding to an agenda which desperately needs clarification, a dose of common sense and a little less ego.
Both are about securing the best outcomes for people with cancer. We all want this. The new Cancer Task Force is tasked with finding new ways of improving cancer services, identifying what needs to be done better in future by studying the kind of care patients get today. By this summer it will publish a five-year plan that aims to deliver:
Also announced at the same time as the Task Force, is the “ACE Programme”, which Cancer Research UK is leading jointly with NHS England and Macmillan. This programme has identified more than 60 potential projects to address late diagnosis. These will be led locally by NHS teams and...
A new collaboration announced today gives unprecedented access to over 400,000 brain tumour tissue samples for research.
This initiative, called the Brain Tumour Archive Network, will unlock thousands of previously hard to access brain tumour samples for researchers throughout the UK.
Creation of the network is being led by brainstrust and supported by a wider group of brain tumour charities including Charlie’s Challenge, Brain Tumour Research and umbrella group Sophie’s Wish. BRAIN UK, operating at the University of Southampton, will link existing archives of brain tumour tissue in a virtual network so that researchers can gain access to unprecedented levels of tissue to support their much needed research into better...