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News archive    2015   
  • brainstrust's data workshop: exploring how National Cancer Registry data can be used for the benefit of the brain tumour community

    We know that there are so many questions you need answering when you’re diagnosed with a brain tumour.

    That’s why a few weeks ago we held a fascinating workshop which explored how National Cancer Registry data can be used for the benefit of the brain tumour community.

    By bringing together people living with a brain tumour, their carers, health care professionals and key players from charities and cancer registry services, we aimed to identify what specific questions we, as a community, want answered and how new ways of looking at registry data can give us these answers.

    We’re now working hard to take this forward. We hope that in the near future there will be a process in place where data can give people living with a brain tumour the answers about their condition that they need, so that they can regain control sooner. 

     






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    Category: Charity News | Published: 2 February 2016
  • Proton beam therapy: our response

    We often get asked about the effectiveness that proton beam therapy has on treating brain tumours.

    Helen, Our Director of Policy and Services, is on the NCRI Clinical and Translational Radiotherapy Working Group, which helps to develop radiotherapy clinical trials. The group have recently approved a document which provides a detailed overview of proton beam therapy. You can read the document by clicking here.

    The recent interest in proton beam therapy coincides with the publication of our new resource- my radiotherapy book. The resource outlines the range of treatment options currently available to people living with a brain tumour, and below is the response included on proton beam therapy.

    It is important...





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    Category: Charity News | Published: 29 January 2016
  • My radiotherapy book: a new resource to help you understand the treatment

    We know how confusing a brain tumour diagnosis is. That’s why we’ve recently added a new directory to our resources that helps you understand treatments options.

    My radiotherapy book outlines and explains the range of radiotherapy treatments that are currently available, so that you know what would be the best treatment for the type of brain tumour you are living with, whether you are a carer or a patient.

    Featuring explanations of different forms of radiotherapy, such as stereotactic radiosurgery and proton beam therapy, as well as the potential side effects and a glossary of terms you may encounter during treatment, this little bit booklet will help put you back in control.

    More control can mean a better outcome. We know.

    Click here to download the resource.




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    Category: Charity News | Published: 29 January 2016
  • Expert-led coaching workshops

     

    A brain tumour diagnosis is terrifying. We know.

    That’s why we’re running coaching workshops across the country to put you back in control.

    Become stronger, more resilient and communicate better through these sessions led by our expert coaches, who also know how hard it is to live, and look after someone, with a brain tumour. 

    Both people living with a brain tumour and carers are welcome. 

    It’ll be a safe space to talk and be heard, have improved well-being, and leave with some strategies to help cope with the challenges ahead.

    "Thank you so much for organising the event.  Every little thing that I learn about my condition helps me face the future" - London coaching workshop, June 2015. 

    Upcoming workshops:

    • Chichester, Wednesday 10 February, 2-5pm
    • Sheffield, Monday 22 February,...





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    Category: Charity News | Published: 28 January 2016
  • New state of the art MRI suite at Sheffield Children's Hospital will transform the treatment of brain tumours in children

    Sheffield Children's Hospital has recently opened new operating theatres, which will offer children living with a brain tumour in the area and beyond a greater level of care. The suites feature the latest technology, which will help healthcare professionals to keep young patients safe during surgery.

    One of the theatres is already being considered the most advanced in the country, if not the world. The new intraoperative MRI suite, featuring a state of the art 3T MRI scanner, was funded by The Children's Hospital Charity and allows surgeons to scan patients while an operation is still in progress.

    Pete Burchill, Support Specialist for brainstrust in Sheffield, says:

    “This is really exciting news and the new equipment will enable surgeons to remove much more of a child’s tumour. We know that the more tumour safely resected, the better the prognosis, so this will transform the way children living with a brain tumour are treated, and their outcome. It is all the more exciting for the...




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    Category: Charity News | Published: 27 January 2016
  • Volunteering opportunity: join the team at the Lincoln 10K

    We’re currently looking to recruit volunteers to help at the annual Lincoln 10K- a race which we're an official charity partner for.

    As a volunteer you'd be providing a vital role on the day, stepping into any of these roles:

    • Route marshall
    • Helping out on the drinks station
    • Offering support in the buzzing Event Village
       

    Where possible, volunteers will be stationed close to our charity cheering point, so there's a good chance you'd get to see any friends or loved ones taking part in the run.   

    This is a great opportunity to get involved with and, although you might not be running, you’ll still be helping those affected by a brain tumour in your area. Plus, you'll get to experience the buzzing atmosphere the event is known for. 

    Sign up as a volunteer today 

    Volunteers would be needed from around 8.30am to 1.30pm.

    For more info, or to sign up email pete@brainstrust.org.uk or call 07741 316277.






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    Category: Charity News | Published: 21 January 2016

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