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News archive    2014   
  • 'Achieving world-class cancer outcomes: a strategy for England 2015-2020' - Our response

    The Independent Cancer Taskforce recently published a new report: Achieving world-class cancer outcomes: a strategy for England 2015-2020, which sets out recommendations for a new cancer strategy in England.

    brainstrust’s response:

    The strategy outlined looks very promising, and many of the plans will have a positive impact upon our community, especially considering our representation on many cancer groups.

    The report itself has breadth and depth and builds on everything that has gone before it (back to Calman Hine in 1995, the 2000 Cancer Plan, 2007 Cancer Reform Strategy, 2011 Cancer Outcomes Strategy).  It is well grounded in research and has a sense of reality about it. It is do-able. It pulls together, for the first time, the disparate strands of early diagnosis, data and information, and survivorship. 
    And through our representation on the NCIN and the NCRI, we are well placed to wave the flag for brain tumours, so that the plans for world class outcomes can also reach our community.  

    The report highlights what we have been shouting about - that there isn't enough resource to deliver. We...

    Read full story
    Category: Charity News | Published: 20 July 2015
  • Our supporter, Ruth Thompson, raises £3,750 for brainstrust at Summer Ball

    Ruth Thompson, one of our amazing supporters, held a charity ball last month at Hazel Grove near Stockport.

    Many of her friends and family attended the event, which went on to raise an incredible £3,750 to help fund our support service.

    Ruth, and brainstrust, would like to thank the sponsors of the ball: C&C Insurance Brokers, Beddard Roofing, Cheshire Flowers and Simon Dunn Handmade Chocolates, as well as Hazel Grove Golf Club for the fantastic food and venue.

    Finally, a huge thank you to everyone who bought tickets and donated raffle/auction prizes, and a special thanks to Ruth for organising such a successful event. The funds raised will go towards helping people in the area who are living with and beyond a terrifying brain tumour diagnosis.

    Ruth, you're amazing!

    Read full story
    Category: Fundraising News | Published: 17 July 2015
  • Your chance to get involved with some interesting research about illness perceptions and quality of life.

    Francesca Smithson Evans, a trainee Clinical Psychologist at the University of Hull, is conducting an interesting research project about whether the way a brain tumour diagnosis is communicated can affect illness perception and quality of life.

    We know that quality of life is of utmost importance to our community. And, we’ve also recently been heavily invested in improving the communication of a brain tumour diagnosis and creating better conversations between clinicians and their patients.

    So, this project seems relevant to you, our brain tumour community, and below are details of how you can be a part of it.

    Click HERE to begin the questionnaire. 

    Read full story
    Category: Charity News | Published: 15 July 2015
  • brainstrust’s Dr Helen Bulbeck gives main lecture at the closing day of the BNOS conference

    On Friday, our Director of Services and Policy, Dr Helen Bulbeck, gave the introductory lecture at the 2015 BNOS conference. She presented to members of the clinical community, charities and healthcare professionals about how clinicians can best communicate a brain tumour diagnosis to their patients.

    We know that you want better, more honest conversations with your clinical teams, sooner. The lecture communicated the importance of addressing this, and shows methods to how it can be achieved by taking a ‘patient as the co-pilot, not passenger’ approach.

    Helen’s closing remarks, ‘say what you notice. Not what you think’ would give patients and clinical a much more equal role in consultations, if applied.

    This approach would help put you in control from the moment of diagnosis.

    And more control can mean a better outcome. We know.


    Read full story
    Category: Charity News | Published: 3 July 2015
  • The Brain Tumour Tissue Campaign presented to healthcare professionals at annual BNOS conference

    Today, leading members of the UK’s clinical community were encouraged to seek consent from their patients for resected tumour tissue to be donated for research.

    The presentation was delivered by Dr Kathreena Kurian, the lead expert neuropathologist for brain tumour research at North Bristol NHS Trust and Brain Tumour Tissue Campaign partner.

    Dr Kurian presented the importance of consent, using her own experience of having surplus tissue stored in neuropathological archives that could not be used for research purposes. She also discussed the processes of seeking consent, with ethically approved information sheets and forms, and the need to raise the number of patients consenting from 30 to 80%.

    The presentation was well received and many medical professionals approached brainstrust and the campaign’s partners shortly afterwards for more information about the consent forms, and the process of acquiring these, as well as to ask questions about the various stages in which consent can be sought.

    Clinicians, you can find answers to these...

    Read full story
    Category: Charity News | Published: 3 July 2015
  • David Mutton to take on Ironman 2015 for brainstrust.

    One of our amazing fundraisers, David Mutton, is soon to take on one of the most difficult one day sporting events in the world: Ironman, comprising a 2.4 mile swim, 112 mile bike ride and 26.2 mile run.

    It’s not the first time David has done something huge for brainstrust. In May 2011, he cycled from London to Paris to raise money for our support service.

    “When I finished London to Paris my first feeling was relief. I'd pulled a ligament/muscle behind my left knee on day 2 and I was in agony. There were points on the 3rd day when I thought about getting in "The Love Bus" (the minibus at the back) but then I thought to myself "David, there's thousands of people out there who are going through a lot worse than you did. You are not going to quit now!!!" My second feeling was a sense of accomplishment. I remember thinking "wow - you've had brain surgery and cycled to Paris" and now here I am in just under 3 weeks’ time about to enter Ironman, one of the most difficult one-day sporting events in the world”

    David’s training for next month’s challenge...

    Read full story
    Category: Fundraising News | Published: 25 June 2015

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