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News archive    2014   
  • A 10K for TEAFEST

    A few years ago, brain tumour patient Suzanne Wag raised nearly £1000 for brain tumour support by celebrating the British cuppa, but this year she wanted to do something more challenging, for herself.

    She thus decided to swap tea for a 10K and chose to compete in the St David’s Day Run, in order to raise money for brainstrust.

    "braintrust have been fantastic in supporting me through the whole journey, even now as I await results from my latest MRI to see if the pesky thing is back"

    The 10k took place on Sunday, almost two years to the day since Suzanne underwent brain surgery for her tumour. The run was also her first since the surgery, and she came in at an impressive 59min 44secs.

    To ensure it was clear that she was running for brain tumour support, Suzanne’s mum knitted her a brain hat to wear on the day.

    Suzanne has already exceeded her fundraising target for the 10k on her JustGiving page. Any further donations, as a ‘well done’ to Suzanne, will help brainstrust build a support...

    Read full story
    Category: Fundraising News | Published: 3 March 2015
  • Mindful Drawing Workshop with Artist Michelle Charles

    Michelle Charles is running an inspiring drawing workshop for brainstrust on 9th March 2015, 11:00 – 2:00.


    We know how valuable it is to get together with others who truly understand. Come along and meet others in the brain tumour community.

    Who is this workshop for?

    • This workshop is for you, our brainstrust community. Whether you have lots of experience or have not drawn since in school, come along. No prior experience is necessary.

    What to expect of the session

    • Expect to have some fun. We will be doing some really simple exercises that are designed to enable relaxation and laughter.

    What to expect after the session

    • Expect to come away with a little surprise gift courtesy of us, and some newly acquired creative skills.

    What to bring

    • Simply bring a small meaningful object that fits in your hand.

    RSVP today

    Read full story
    Category: Charity News | Published: 2 March 2015
  • The attitude towards brain tumours needs to change.

    Cancer Research UK has recently published their latest statistics on ‘lifetime risk of being diagnosed with cancer’. Their statistics for brain cancer includes “only malignant brain, other central nervous system (CNS) and intracranial tumours”.

    Does this infer that benign tumours aren’t as isolating, terrifying or as much as a risk as any other type of cancer? Because they are and the day we start to recognise this can’t come soon enough.

    For more information on where we stand in regards to benign brain tumours, read our response to ‘Do benign brain tumours exist?’, a recent question asked on the Jeremy Vine show.

    What do you think? Share you views on the brainstrust pinboard over on

    brainstrust is here 24/7 to help everyone diagnosed with any type...

    Read full story
    Category: Charity News | Published: 26 February 2015
  • brainstrust launches The Brain Tumour Tissue Campaign today.


    Save lives - be a brain tumour tissue donor

    Brain tumour tissue is removed everyday by surgeons but very few people know they can donate brain tumour tissue to research. A new campaign launched today [Tuesday 24 February] at the University of Bristol led by leading medical researchers and charity, brainstrust seeks to raise awareness for patients and healthcare professionals about donating brain tumour tissue and helping researchers find a cure for this disease. 



    Just one third of surgical patients offered opportunity to consent

    A recent national survey by North Bristol NHS Trust, BRAIN UK and brainstrust indicated that only 30 per cent of brain tumour patients are offered the opportunity to consent for their brain tumour tissue to be used in research. Yet a recent poll by brainstrust suggested that over 90 per cent of patients...

    Read full story
    Category: Campaign News | Published: 24 February 2015
  • Brain cancer patient Jemma Mytton to climb Snowdon for brainstrust

    Jemma, who was diagnosed with a tumour a few years ago, is taking on the mammoth challenge to raise funds for brainstrust and help us provide the same vital support to others as we provided to her after diagnosis. Below, Jemma shares her brain tumour story, the reasons behind choosing Snowdon and why she needs to give something back to brainstrust. 


    "As a group of girls in their early 20's, my 4 best friends and I have all individually been through a lot of ups and downs in our lives. They say what doesn't kill you makes you stronger and I say that being surrounded by best friends has made me a million times stronger. Especially over this past year. Without these girls I wouldn't be climbing Snowdon and raising money for a charity which has gone above and beyond to support my family and I over the past few years, ever since my brain tumour diagnosis. 

    After 8 years of mystery symptoms and numerous doctors’ visits, the cause was eventually found and just before my 18th birthday I was diagnosed with a ‘Low Grade Glioma’. The best option at the time was to watch and wait and this worked for me as I still had 3 years of university ahead of me, and the risk of surgery outweighed the benefits. After an amazing year of travelling and working in Australia I came home and my...

    Read full story
    Category: Fundraising News | Published: 23 February 2015
  • "Benign tumours" discussed on Jeremy Vine Show.

    "Is there such a thing as a benign tumour?" A salient question, raised on BBC R2 today. And our response, based on years of working with the brain tumour community? Helen Bulbeck from brainstrust says...

    "No brain tumour can be benign. We know the impact is devastating. Whilst the clinical community use the words ‘benign’ and 'malignant' to understand the pathology of the disease and plan treatment, for the 55,000 people living with the disease, and their carers, benign or not, the disease is debilitating. Brain tumours impact on relationships, personality, speech and independence. All brain tumours are isolating, terrifying and confusing. All types of brain tumour can kill. And the day that all people are able to access good quality, effective help can't come soon enough"


    What do you think? Share you views on the brainstrust pinboard over on

    brainstrust is here 24/7 to help anyone diagnosed with any type of brain tumour. Call 01983 292405 or email

    Read full story
    Category: Brain News | Published: 23 February 2015

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