News archive 2015
"brainstrust is dedicated to providing personal round-the-clock support for people with a brain tumour, and creating resources that help them feel less afraid, less alone and more in control. I’m delighted to be leading the board of trustees as we bring our services to more and more people around the UK.” - Chris Baker, brainstust chair of the board.
It's an exciting time for brainstrust as we make new appointments so that we can help and support more people with a brain tumour across the UK.
We've appointed a new chairman and our first chief executive.
Chris Baker is the new chairman of the board of trustees. Chris is the UK managing director of global technology company, Concur, and a former senior director of Microsoft. Chris has been a trustee since 2011.
Our ambitions to expand our services has led to promoting Will Jones to the role of chief executive.
Read full storyCategory: Charity News | Published: 26 October 2016
Teenagers and young adults with cancer are being invited to have their say about the research needed to help tackle cancer in young people.
By completing an online survey, teenagers and young people, and their family, friends, caregivers and clinicians can have a voice to help shape the future research agenda, and make sure that young adults receive the best care and treatment they need.
Teenagers and young adults with cancer have different experiences and needs to those of children and older people with cancer, so it’s important that they have their say. The findings from the survey will be used to identify the top ten research priorities and unanswered questions about cancer in teenagers and young adults.
The survey has been launched by the Priority Setting Partnership (PSP), set up by the James Lind Alliance (JLA) and is funded and supported by Teenage Cancer...
Read full storyCategory: Research News | Published: 7 October 2016
An initial study suggests that an experimental drug could be effective in treating patients with glioblastoma (GBM).
Durvalumab, a drug used to fight other kinds of cancer, is being tested on 148 patients in a clinical trial in the US. Early data suggests the therapy may stop the cancer in a significant minority of cases. Of the first 30 patients who received the drug, six people had shown no sign of deteriorating after six months. This is one person in five.
It’s great to hear news about this trial, but it’s important to put the results into context. It is only six people and it’s a very early stage of the trials.
According to David Reardon, clinical director of the Dana-Farber Cancer Institute’s centre for neuro-oncology in Boston, Massachusetts, the findings are promising but very preliminary.
Dr Helen Bulbeck, our Director of Services and Policy at brainstrust, says: “As with all of these baby steps towards a breakthrough they have to be put in context. This is a very early phase trial and immunotherapy is only appropriate for a minority. So we'll watch this space and catch up with David Reardon in November. And keep you posted. There are several trials being designed at the moment and they'll be added to the
Read full storyCategory: Research News | Published: 4 October 2016
Thank you to everyone who took part in Wear Grey for a Day 2016. It was a great success.
Thousands of people around the country helped turn the world grey on October 1st to raise awareness of brain tumours. Throughout the day, people shared their photos, stories and reasons for wearing grey. Loved ones were remembered.
Liz Kirtley, one of the Wear Grey for a Day supporters, explained why she got involved. “I wore grey on Facebook and in real life. I have a low grade brain tumour. Many people really don’t understand how it affects us physically, mentally and emotionally. The support of charities like brainstrust is so important.”
Thanks to everyone who put on their greys. Together, we made the world notice. Here are a few photos from the day.
It's not too late to make a difference.
You can still support people living with a...
Read full storyCategory: Charity News | Published: 4 October 2016
The world is turning grey today for people with brain tumours.
Today is your chance to help improve the quality of life, and care, for people living with a brain tumour. Simply Wear Grey, and text-donate.
Thousands of people around the country are already taking part so that brainstrust can help people with brain cancer feel less alone.
Wear Grey. Text your donation today.
Please, show your support. Wear Grey and donate by texting: WGRY16 £5 to 70070. Let's take the fear and confusion away.
Read full storyCategory: Charity News | Published: 30 September 2016
Are people living for longer with brain cancer? 'Cancer Then and Now', the New Macmillan report is out today.Today Macmillan publishes a new report, Cancer Then and Now, highlighting the impact that improved cancer services have had on the cancer community in the last 50 years.People are living longer - good news.But this is not the case for every cancer. We know that there are over 55,000 people living with a brain tumour in the UK [see inforgraphic, right]. And we know that there have been too few improvements in the treatment of brain cancer in the last 50 years. We also know that as more people are living with primary cancer, the numbers of people with brain metastases is increasing. What does this mean? Well for us it means that we are working hard to improve the quality of life and care agenda for our community. We have just completed a literature review for mood, behaviour, cognition, depression, anxiety in people living with a...
Read full storyCategory: Campaign News | Published: 1 August 2016