News archive 2013
Once again, long-standing brainstrust supporter Clive Wooster has taken on a circumnavigation of the Isle of Wight, by foot, for our work to help people facing a brain tumour diagnosis.
Clive and his team, which included Jon Owens and Damien Weight completed the 68 mile walk over 3 days. Clive says, “We’re still talking and can just about stand but raised over £2,700 for brainstrust, so a big thanks to all our supporters".
Before the walk, Clive said to us, "Most of my friends know how tough this walk is, so I'm delighted that Damien and Jon are joining me for what I told them was a nice stroll with a few pub stops. Actually, they have a suspicion I'm fibbing, but nonetheless are willing to do 24 mile days to support this great cause."
The funds that Clive, Jon and Damien have raised will help us keep our 24/7 support line open, go towards more of our revered resources, and
Read full storyCategory: Charity News | Published: 16 April 2014
You may have read and been inspired by Lorna Keen and Jacqui Thake's 300 mile cycle ride through Rajastan that appeared in the Mirror newspaper on the 12th April. If so... read on to find out how you too can have the adventure of a lifetime, and support our work helping people get back on top of things following a brain tumour diagnosis.
We work with many different challenge companies who organise “Open Challenges”. This means you can register for a challenge and fundraise for the charity of your choice.
People have taken part in so many varied events to support our work, including climbing to Everest Base Camp, climbing Kilimanjaro and trekking across Jordan. There are many overseas cycle rides – from London to Paris to cycling across Rajasthan and pretty much anything in between. We even had one team of cyclists peddling through 5 countries in 5 days through Europe,...
Read full storyCategory: Fundraising News | Published: 3 April 2014
We know how important a community is to people battling a brain tumour. Having people to talk makes big problems smaller, and the feelings of isolation and loneliness that are common following a brain tumour diagnosis can be made to go away.
brainstrust is working hard to create a community for brain tumour patients in Scotland. Having people to talk to will help our Scottish brain tumour patients and carers feel like they can think about living, rather than focusing on their brain tumour.
With your support we can make things even better. We will:
- Hold more Meet Ups across Scotland (each one costs between £300 and £500)
- Build capacity to make our phone and email support response times quicker than ever (we’re already pretty fast mind!). It costs us £120,000 a year to keep the service up and running.
- Hold training, education and networking events for brain tumour carers (each day costs around £2000)
- Employ more people to support patients in Scotland directly, at home, immediately after a brain tumour diagnosis (Up to £18,000 a year)
- Support patient and carer focused research projects in...
Read full storyCategory: Charity News | Published: 2 April 2014
The emotional impact of a brain tumour can be tough for patients. Receiving the news of the diagnosis, undergoing those complex treatments, managing the associated side effects, and adjusting to a new way of life can all have a massive effect on our state of mind.
Researchers at the University of Sheffield's Department of Psychology are looking into how cancer patients feel about themselves and the consequences that those feelings might have for mental wellbeing. The team hope that the link between feeling states and mental health can eventually be modified, resulting in significantly improved wellbeing for those affected.
We know that improved wellbeing means a better quality of life, and so we're delighted to invite our patient community to take part. In fact we're positively encouraging it!
The study is open to patients of any age who have been diagnosed with low-grade or malignant tumours. Taking part in the research involves completing a series of short questionnaires, each of which will take approximately 15 minutes. All responses are anonymous and will be treated confidentially. Everyone taking part will be given a full debrief and feedback on the results at the end of the study.
For more info on the research or to take part,
Read full storyCategory: Research News | Published: 23 March 2014
Sally Prior is doing a sponsored silence over the Mother's Day weekend in memory of her Mum, Joan Tees, who died last year after being diagnosed with a brain tumour. All the proceeds from Sally's sponsored silence will be going towards our work to support people affected by a brain tumour diagnosis. Last year Sally’s daughter Kristis Prior did a skydive a week after her nan’s funeral and raised over £650.00.
Sally says: “The challenge is no talking, texting or typing for three days - as I don't stop talking and do most of my work by phone or internet it's going to be very hard! I work in the music industry and obviously most of us are very vocal - my friends are so sure it's impossible they are queuing up to sponsor me!”
Sally's fundraising page is www.justgiving.com/Sally-Musicsak
Read full storyCategory: Charity News | Published: 21 March 2014
In partnership with the clinical and research community, we are looking for your questions about living with a brain tumour to help direct areas of research that are important for patients in future.
At the moment, brain tumour research in the UK doesn't feel very unified. We are working with all the right people, and of course that includes patients and carers to solve this.
How? Well it's simple. We need your questions.
You ask the questions that are important to you about any aspect of living with a brain tumour. We then review the questions to identify the top ten priorities according to the brain tumour community. These priorities then drive the research agenda in the UK, making a difference to all.
This project is so simple, yet it willl be cohesive, effective and impactful - setting the agenda for brain tumour research for years to come.
For example, you may have a question about any of the following:
- Brain tumour diagnosis
- Brain tumour treatment
- Tumour-related symptoms (e.g. epilepsy, headaches, poor sleep)
- Palliative care
- End of life...
Read full storyCategory: Research News | Published: 28 February 2014