News archive 2016
We know how hard it is to find great support when you've been diagnosed with a brain tumour. It's the reason we founded brainstrust 10 years ago, and why we wanted to provide 24/7 personal support and signpost you to other help that's available, wherever you may live.
We launched our Little White Book directories to help you find your way on your brain tumour journey. Each Little White Book is produced regionally and signposts you to the support available in each area.
We’re now launching Little White Books in Greater Manchester, Tees Valley, and one in the North West, focusing on children's brain tumour services. Each book has easy to navigate information on UK brain tumour resources.
Read full storyCategory: Charity News | Published: 27 February 2017
'When I have a cup of tea I feel supported. I feel very cared for by brainstrust.'
Brain tumour support is built on tea. We know.
Having a cup of tea and a chat can help people with a brain tumour to think things through before making decisions about their care or treatment, helping them to feel more in control.
This week, join us for Teafest17 and help the 60,000 people living in the UK with a brain tumour to feel less alone and afraid, and more in control.
- Why not hold your own Teafest at home, school or work?
- Ask your local cafe or coffee shop to get involved.
- Shop for Teafest - buy tea towels, tea mats, mugs, wristbands and more for your Teafest event.
- Swap your morning cuppa for a text donation.
Read full storyCategory: Charity News | Published: 21 February 2017
Last year, Dillon St. Paul took part in the BBC’s The Apprentice, where he battled in the boardroom to become Lord Sugar’s business partner.
At the time, Dillon believed it was the hardest thing he has ever done, but now that he’s survived brain tumour surgery his outlook on life has changed forever.
Dillon has written a blog about his experience of brain tumour surgery, and wanted us to share this with the brain tumour community. You can read Dillion's blog here.
Read full storyCategory: Brain News | Published: 9 February 2017
Despite suffering from motion sickness, Lynn Crichton was determined to skydive 10,000 feet out of a plane in memory of her fiancé, Garreth, who sadly died of a brain tumour in 2012.
Garreth was a very outgoing and adventure-loving person, so a skydive is exactly the sort of challenge that would have got his stamp of approval.
“Garreth had lots of friends and was loved by everyone who knew him,” says Lynn. “He was a very positive person and always gave lots of good advice and encouragement. He had done lots of travelling, and he’d done a bungee jump, so he would have been thrilled at me doing a skydive!”
Lynn wanted to raise funds in Garreth’s memory, so contacted brainstrust for more information. “I was impressed by the personal service I received,’ says Lynn. So much so, that she decided to start fundraising to help the thousands of people in the UK with a brain tumour.
She got involved in Teafest, followed shortly after by a 12-mile cycle ride. For her next challenge, she was persuaded by her friend Carol Cochrane, who is also brainstrust’s community...
Read full storyCategory: Fundraising News | Published: 19 January 2017
Last night a shining light has gone out at brainstrust and for the brain tumour community. Last night we said goodbye to our friend Shaun Skinner.
Despite the personal challenges created by his own brain tumour, Shaun has been a close friend, ally and advocate to us all, working tirelessly to raise awareness of the real impact of this horrible disease, and funds for our work to help people with a brain tumour to feel less alone, less afraid and more in control.
Shaun asked us to help him with 'Wear Grey' back in 2011. Since then Shaun, with Wear Grey, has helped over 1 million people understand the impact of brain tumours. In addition, he has inspired people to raise funds for brain tumour support well in excess of £100,000.
Of course we will now be working harder than ever to make Wear Grey the event that Shaun...
Read full storyCategory: Charity News | Published: 16 January 2017
Sam Newton is all too familiar with the anxiety that scans can cause. She’s experienced it as a brain tumour patient and as a health care professional.
Sam is a radiographer, specialising in breast screening, and working with people who have cancer or are anxious and afraid that they have cancer. Sam is also a patient. Three years ago, she was diagnosed with two meningiomas, and now has regular scans.
As a patient and professional with 23 years of experience, Sam understands the process more than most, but it doesn’t make having an MRI scan any easier. “Personally, I dislike them,” Sam says. “I am very claustrophobic, so I have medication to help me cope. My MRI colleagues are fantastic; they always look after me very well. But there is always that anxiety of what if. What if it's reoccurred or what if my second tumour has grown. It’s good to know I'm monitored but it always heightens my worries.”
Her own experience means she understands exactly how her patients are feeling. She understands the worry. She understands the fear. And the feeling of not being in control,...
Read full storyCategory: Charity News | Published: 6 January 2017