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the latest brain tumour stories, current brainstrust
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News archive    2014   
  • Upcoming Meet Ups with the brain tumour community- get together with others who truly understand

    We know how lonely it can be living with a brain tumour. We also know how beneficial it can be to share your experiences.

     

    We organise Meet Ups for the brain tumour community to get together, share experience and have some fun. No matter where you are on your journey or what role you have (such as carer, patient, health care professional) come along and spend time with others who truly know what you’re going through.

     

    Here are some Meet Ups we have coming up in the near future. Please join us- we always love to see you.

     



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    Category: Charity News | Published: 24 August 2015
  • little brainstrust Meet Up - Yorkshire Wildlife Park

     

    We know how hard it is, when you have a child who has a brain tumour.  This September we’re holding a Meet Up at the Yorkshire Wildlife Park near Doncaster, which will give you the chance to meet other families in the same situation.

    This Meet Up will help you see that you’re not alone, and will be a great opportunity to share tips and offer mutual support. What's more, it'll be fun for the whole family! 

    We'll be getting up close and personal with the lemurs, coming face to face with the leopards, and meeting some of the park's latest arrivals, including Pixel the Polar Bear. It will be a real treat that you all deserve.

    “It's very rare to sit amongst other families who can relate to the challenges that we are facing with our children. We found it really beneficial” - Mum, Children’s Meet Up, 2013 

    Book your place...





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    Category: Charity News | Published: 19 August 2015
  • A colour run in memory of Ruth

     

    Melanie Langston, alongside her family and friends, took part in the Run of Dye colour run in Ipswitch in memory of her sister Ruth, who sadly passed away of a brain tumour in December.


    Ruth’s battle with the tumour was particularly tragic. She passed away at just 34, after 11 months of intense treatment, which left her unable to see her beloved daughter Lydia’s first birthday. And, by Lydia’s second birthday Ruth had passed away.

    brainstrust supported Ruth’s family through this devastating time and Mel wanted to do something so that other families living with the challenges of a brain tumour could receive the same amount of support.

     “We had a ball at Run or Dye colour run and between 20 of us have raised this money for brainstrust. brainstrust and especially Helen was a huge help and support to me when we were on our tragic journey and I hope this money will help others too”

    Together, Mel and the...




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    Category: Fundraising News | Published: 11 August 2015
  • Sponsored haircut raises over £600 for brain tumour support.

    Emma Chapman of Mad Hatter’s Tea Parlour took the brave step of cutting her long hair in order to raise money for our support service. The haircut was in memory of her friend, Tony Gouldman, who passed away of a brain tumour in June. brainstrust had supported Tony and his wife Sally following diagnosis.

    It’s not the first time Emma has fundraised for brainstrust. In January she held high tea at her Mad Hatter's Tea Parlour, alongside Tony and Sally. The haircut was just another way of giving back to the charity that has helped those close to her.

    “I feel passionate about helping brainstrust who can help those and their families in need with the support they can offer… I will admit I was a bit scared, but not as scared as those who are actually diagnosed with these diseases- mine is just 8 inches off my hair which will grow back, they need more support and care than I do”

    Emma’s haircut raised an incredible amount- over £600- money which will be spent supporting more people like Tony and Sally, and help them feel less afraid, less alone and more in control in the face of...




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    Category: Fundraising News | Published: 11 August 2015
  • 'Achieving world-class cancer outcomes: a strategy for England 2015-2020' - Our response

    The Independent Cancer Taskforce recently published a new report: Achieving world-class cancer outcomes: a strategy for England 2015-2020, which sets out recommendations for a new cancer strategy in England.

    brainstrust’s response:

    The strategy outlined looks very promising, and many of the plans will have a positive impact upon our community, especially considering our representation on many cancer groups.

    The report itself has breadth and depth and builds on everything that has gone before it (back to Calman Hine in 1995, the 2000 Cancer Plan, 2007 Cancer Reform Strategy, 2011 Cancer Outcomes Strategy).  It is well grounded in research and has a sense of reality about it. It is do-able. It pulls together, for the first time, the disparate strands of early diagnosis, data and information, and survivorship. 
    And through our representation on the NCIN and the NCRI, we are well placed to wave the flag for brain tumours, so that the plans for world class outcomes can also reach our community.  

    The report highlights what we have been shouting about - that there isn't enough resource to deliver. We...



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    Category: Charity News | Published: 20 July 2015
  • Our supporter, Ruth Thompson, raises £3,750 for brainstrust at Summer Ball

    Ruth Thompson, one of our amazing supporters, held a charity ball last month at Hazel Grove near Stockport.

    Many of her friends and family attended the event, which went on to raise an incredible £3,750 to help fund our support service.

    Ruth, and brainstrust, would like to thank the sponsors of the ball: C&C Insurance Brokers, Beddard Roofing, Cheshire Flowers and Simon Dunn Handmade Chocolates, as well as Hazel Grove Golf Club for the fantastic food and venue.

    Finally, a huge thank you to everyone who bought tickets and donated raffle/auction prizes, and a special thanks to Ruth for organising such a successful event. The funds raised will go towards helping people in the area who are living with and beyond a terrifying brain tumour diagnosis.

    Ruth, you're amazing!







    Read full story
    Category: Fundraising News | Published: 17 July 2015

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