News archive 2014
One of our lovely supporters, Sharon Springall decided to mark the end of summer a few months back by putting on a fundraising Music Festival to raise money for our support service.
Sharon, from Essex, was diagnosed with a left cavernous sinus meningioma in 2010 following cerebral oedema and required six months off of work to recover.
"The shock and horror of the diagnosis had a huge impact on me and my family, so I went into denial and threw myself into my work, only to suffer further on August 2012 when I collapsed at work and following a visit to A&E by ambulance, I was diagnosed with aseptic meningitis secondary to the meningioma. I was seriously ill for a further eight months and the effect that this had on me mentally and physically has been life changing. I had to concede and give up my job a year later following an unsuccessful phased return to work, as I was unable to cope mentally & physically. I have since then been diagnosed with chronic pain, chronic fatigue and now suffer from spondylosis potentially due to nerve damage caused by the inflammation of the...
Read full storyCategory: Fundraising News | Published: 12 November 2015
A brain tumour diagnosis is terrifying. We know.
That’s why we’re running coaching workshops across the country to put you back in control.
Become stronger, more resilient and communicate better through these sessions led by our expert coaches, who also know how hard it is to live, and look after someone, with a brain tumour.
Both people living with a brain tumour and carers are welcome.
It’ll be a safe space to talk and be heard, have improved well-being, and leave with some strategies to help cope with the challenges ahead.
"Thank you so much for organising the event. Every little thing that I learn about my condition helps me face the future" - London coaching workshop, June 2015.
- Brighton, Friday 15 January, 2-5pm
- Chichester, Wednesday 10 February, 2-5pm
Read full storyCategory: Charity News | Published: 12 November 2015
It was announced yesterday that Canadian researchers have engineered a new, non invasive way to deliver medication passed the blood-brain barrier and deep into the brain.
You can read more about the treatment here.
What this could mean for the treatment of brain tumours
This research could change the landscape for what is an intractable disease.
The blood brain barrier is a physical barrier that stops substances travelling across it, to protect the brain. So to find a way of bypassing this barrier could be a significant shift in the way we treat brain tumours.
We are no longer treating cancer but the biology of cancer, making sure that treatments are personal to each patient. But this is all water in the sand if we can't get the treatments to where they need to be. This research could change that.
It is still early days though and it will be a long time before this goes beyond a phase 1 trial.
brainstrust is presenting at the Society of Neuro-Oncology conference next week and will share more of the latest research...
Read full storyCategory: Research News | Published: 10 November 2015
We know how lonely it can be living with a brain tumour. We also know how beneficial it can be to share your experiences.
We organise Meet Ups for the brain tumour community to get together, share experience and have some fun. No matter where you are on your journey or what role you have (such as carer, patient, health care professional) come along and spend time with others who truly know what you’re going through.
Here are some Meet Ups we have coming up in the near future. Please join us- we always love to see you.
Read full storyCategory: Charity News | Published: 26 October 2015
Blakehill Primary School in Bradford today held a fundraising zumbathon to raise money for our support service.
The school’s decision to support brainstrust was a personal one. Niki Williams, a much-loved teaching assistant and mum at the school, was diagnosed with a glioblastoma in September.
“The diagnosis was a complete shock. I’d been telling my doctor about the headaches I’d be having for a long time, but it wasn’t until a year down the line that I was referred for a scan and then diagnosed. I think it’s important that we raise awareness, so that other people can be sooner diagnosed and have more chance of treatment”
The school went all out to raise awareness and funds so that we can support families like Niki’s.
The hall was turned into a disco, everyone put on their grey and pink, biscuit were decorated and sold at break time and then, all years, teachers and even some parents had a good ol’ dance!
Read full storyCategory: Fundraising News | Published: 21 October 2015
This year we launched our Brain Tumour Tissue Campaign, which aims to increase the number of people consenting to donate their resected brain tumour tissue to research. You can read more about the campaign, and how you can start the conversation HERE.
An article on the topic, which brainstrust had significant involvement in, has been published in a selection of journals on Biobanking.
Helen Bulbeck, our Director of Services and Policy at brainstrust, and member of Independent Cancer Patients Voice, puts forth what needs to be done in the section ‘Brain Tumour Tissue Bank: The brainstrust Proposal’. You can read the full article HERE.
This is just another step forward for our campaign and ensuring that its importance is known in the academic/clinical field.
We’ll keep working hard until 80% of...
Read full storyCategory: Campaign News | Published: 16 October 2015