brainstrust

Would you like to find out more about brain tumours and their symptoms? Or have you just received the diagnosis? Perhaps you need a guide to the people who can help you? Your search is over; you'll find this information here : all neatly charted for you.

What are brain tumours?

Patient UK have developed a leaflet which provides an excellent overview of the different types of brain tumour. This is a useful starter that also includes information on brain tumour symptoms, their diagnosis and treatment.

Download the Patient UK leaflet (PDF, 114Kb) »

Have you lost your way?

brainstrust has put together a guide to help you find your way. The guide is based on our experiences and details which people have been involved in Meg's care. We have found that it has been pretty much left to us to orchestrate things: make appointments, ask to see people, ask questions, find out who is out there who can help. So we hope this guide will help you find your way.

Read the brainstrust guide to who can help »

What to do when you hear the diagnosis?

When the consultant radiologist told us that Meg had a brain tumour, I discovered what being speechless means. I opened my mouth but no words would come out. We had never felt so out of control before. This guide has some suggestions about how to help you feel that you are in control of a situation over which you have no control – at the moment. It does get better.

Read brainstrust's guide to what do to when you hear the diagnosis »

brainstrust can offer you a free 2nd opinion at the National Hospital of Neurology and Neurosurgery in London. If you would like another opinion on your diagnosis and the treatment options available to you then please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call 01983 292 405

Join the brain tumour community

There is a wide variety of websites on the internet to research brain tumours and their treatment. brainstrust keeps up-to-date with developments around the world and provides advice to patients and their families. There is a real need to bring all this information together for patients living in the UK. But for now we recommend you take a look at one of the best websites we have found – BT Buddies.

Books to help you on your journey

Was it C. S. Lewis who said 'we read to know that we are not alone'? Since our voyage began I have read copious books related to neurosurgery – not all non-fiction. If reading helps you, then here a few recommendations.

Recommended books »

It's good to talk

If you need more information or would like to have an informal chat then
you can call Helen on 01983 292 405 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it